Thanks for your wisdom @ClockFace @Emelia8 and hard-won experience. It sounds difficult and traumatic and I very much respect your suggestions. I'll make it a priority to get reliable primary care. Thus far the worst pain has been the legs,  the back and spine less so, but I need to follow up pelvic issues. 

@ClockFace I hope you can find relief, it's been a long battle for you. Hopefully the spinal cord stimulator will become possible for you sooner than you think. It's not good the compression fractures were undiscovered or overlooked. Do you have physiotherapists and occupational therapists on your team?